This text focuses on various factors associated with orphan diseases and the influence and role of health information technologies. Orphan diseases have not been adopted by the pharmaceutical industry because they provide little financial incentive to treat or prevent it. It is estimated that 6, 000-7, 000 orphan diseases exist today; as medical knowledge continues to expand, this number is likely to become much greater. The book highlights the opportunities and challenges in this increasingly important area. The book explores new avenues which are opened by information technologies and Health 2.0, and highlights also economic opportunities of orphan disease medicine. The editors of this new book have international experience and competencies in the key areas of patient empowerment, healthcare and clinical knowledge management, healthcare inequalities and disparities, rare diseases and patient advocacy.Due to his condition, he could not work full-time meaning he has to spend much time at home and at times, this makes him depressed, as he is not as outgoing as ... home. One daughter is a journalist and the other is an interior designer. ... With the help of his daughters Charlie setup a Tumblr blog called a#39;Charliea#39;s Gardena#39;.
|Title||:||Rare Diseases in the Age of Health 2.0|
|Author||:||Rajeev K. Bali, Lodewijk Bos, Michael Christopher Gibbons, Simon R. Ibell|
|Publisher||:||Springer Science & Business Media - 2013-10-21|